A title eludes me today

So Lennon is in the PICU – his heart rate is going down slowly – 157. However his breathing is still labored and hi requires the nasal canular for oxygen. Now there isn’t any fluid or amount of fluid on the lungs that would cause him to breathe like this. However there is fluid collection on the left side, that they will tap into today with a pictail – similar to a drainage tube to get the fluid off.

This morning some levels are really low – others are really high – they are going to talk to hemoc (blood) about how to fix his issues as he is at a high risk for bleeding right now. His white cell count is also extremely low which means he isnt able to fight infections as well – and his glucose is high and some other ones that I have a difficult time remembering.

He is very feisty – in fighting spirits – telling the nurses to leave him alone. He is not interest in anything but potato chips (thank god for IV Nutrition). I did ask since he is keeping things down now (so appears) if we can start the feeds again, thinking that might help in some way. I don’t know how long he will stay in the PICU.

As this is an earlier post, I am editing it. Lennon will have his port replaced today. The yeast infection he has been dealing with appears to be localized to the port as opposed to the blood stream. While this is a “good” thing, I a bit fired up this morning. They tested blood from various locations and this is how they know its not in the blood. I talked to his doc, who didn’t mention a procedure today. So a surgeon came in, which caught be a bit by surprise because no one told me of the plan of action. Surgeon took the blame by saying she should have talked to the PICU folks to see if they had a chance to talk to me. It is Monday morning and they are doing rounds and plan of actions for the week. I don’t care. Someone should have come talk to me before the surgeon walks in with consent forms eh?

Anywho, this is what it is.

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One thought on “A title eludes me today

  1. Communication eh … I always wonder how these poor kids survive who have no parents there to watch out for them and keep tabs on the docs and departments and what they are doing. There were several times were our “interference” stopped unnecessary procedures and greater complications. But I am glad that they have found the source of Lennon’s infection. Hope this means that they can combat and fight it off quickly. Does replacing his port mean another surgery to reinsert a completely new one in a new spot, or just removing the current “equipment” and putting new sterile stuff in where the old was. Sorry … no experience with a port … all our asking and begging couldn’t even get poor James a PICC line until he was in ICU … he had too many fevers of unknown causes that they didn’t dare insert a port as they would never know if/when it was causing problems.Hoping things settle down quickly and that you can get out of PICU soon … hospitals are awful but ICU is the worse, especially for communication.

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