Today Lennon turned 6 and everytime I try to reflect on this…my eyes go from dry to wet. I remember when he first came home how cute he was but also how challenging he was to take care of. I remember when he started to get hs teeth and walk that all he wanted was chips and hot dogs, and I remember how many ties a day and night I would walk in or wake up to him being so sick and unresponsive. I remember telling the doctors there is something wrong but all they could tell me is that he was dehydrated. I remember the days when I could not understand a word that he said, when he should have been able to speak clearly without difficulty. I remember the day of his diagnosis like it was yesterday, the fear, the worry the unknown future. I remember the struggle to get him to take his medications and his “special” ice cream (aka formula) and all the things he could not eat.
I remember the day of the discussion of the transplant and I dream about the last 7 months, think about them and the recognition what a miracle he is. I remember and appreciate the smiles and giggles I can hear, I even appreciate the hysterics he goes through because he is in pain or because he is of his steroids. I smile when I think about him running when he still is challenged to walk without falling. I love how he demands his attention, even if it is inconvenient for everyone else. I love that he says the funniest things, that he likes food fights and that he is full of love and life.