Plan of action

The ammonia is back down in the 90’s and Lennon is acting relatively normal. He is under isolation due to the still existing VRE virus. After a communication break down that is now fixed they have added medication that should get rid of the ammonia in his intestines. They do not think that the UCD is re-emerging but rather that he is having some sort of liver failure. The word is to watch Lennon closely because he can tip over at any point with quite apparent symptoms of chronic liver failure.

The game plan is to keep him in the in the hospital to watch him.
Today (Friday) they are going to get labs for screening to see what it is today.
On Sunday they are going to check his factor levels (5 and 7 I think are the ones low) and try to stabelize with platelets and plasma. But also check other levels such as cbc and ammonia.
They are trying to schedule the biopsy on Monday which means coordinating with radiology and anesthesia, and again check the levels on Monday to see where he’s at. He may require some more platelets or plasma but will need the biopsy within hours of receiving that.

My heart aches because he does look good but the elevated ammonia indicates there is something going on with the liver. He is active and busy and hates being stuck in the room. However, he is being treated as acute and critical because we know he can tip to the worst at any point. I will not speculate on the results of the biopsy and hope for the best. It is minute by minute right now.

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3 thoughts on “Plan of action

  1. Please know that we will continue to pray and that God's will be done. I have asked others to join in prayer believing that God will intervene. I know at that age he is bound to be hard to keep down.

  2. I am so glad to see that they are taking this very seriously and have quickly admitted Lennon in order to get a better understanding of what is going on. My heart aches so much for what you must be going thru and feeling right now … minute by minutes … with the fears of the future minutes always haunting you. It is so good to hear Lennon appears to be doing well … enjoy every minutes of it … minute by minutes!We will continue to petition our Heavenly Father to strengthen you during this time, realizing that all things are in His control and nothing happens by chance … this also has a purpose. I will leave you with words that were a continual comfort for me during our trials with James.Philippians 4: 6, 7 "Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your request to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus."

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