Posttransplant Lymphoproliferative Disease

Here is what we know:

Out of the three sections they took from the liver in the biopsy, one of them has dead cells and the other indicate some sort of infection. It appears it is not at all what the docs expected and have a meeting planned for tomorrow. The thing that appeared in the preliminary results is Posttransplant Lymphoproliferative Disease(PTLD), however they are NOT a 100% sure that this is what it is. They also said to feel free to look it up but to not worry or scare ourselves too much because it seems that this (if this is what it is) than we caught it early enough, though I am not sure what that means either. In reading some information the treatment is additional medication, removing some medication or even chemotherapy. The doc will come by in the a.m. to talk to me to give me more information and then everyone will gather at 1 p.m. to figure out what exactly is going on and what are they going to do about it. Here is the link that I found that seems the most comprehensive about this disease http://emedicine.medscape.com/article/431364-overview.

The thing that throws me the most is that the article states its uncommon .. and it relates to the Eppstein Barr virus (EBV). Which I know those numbers have been screwy since September. One of the meds they have already removed because of this is the cellcept. I quote”The more intense the immunosuppression used, the higher the incidence of PTLD and the earlier it occurs.”

So if you want to know more, read about it but I won’t know anything more of for sure until tomorrow sometimes.

Ugh ..seriously it would be Lennon who develops another uncommon thing. Well I will end this for now ..reading more about it..they did say not to think the worst when reading about the PTLD because Lennon is (if it is this) at the beginning stages. Again I don’t know what this will entail for treatment nor can anyone tell whether it is from the donor liver..or it just developed etc etc.

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One thought on “Posttransplant Lymphoproliferative Disease

  1. Pingback: EBV not detectable | A Boy Named Lennon

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