November 18th, 2008 a day to remember

6 years ago in the early morning my phone rang with a call I didn’t expect so soon. It had only been three weeks since he was listed on the transplant list.

Transplant Co-ordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know to be on stand-by.

Me: Lennon is good – no changes and no cold.

Click

And my mind began to race and my heart began to flutter. Omg is this for real? Are we ready for this? Is he ready for this? Am I ready to let this happen?

I pulled myself together because calls had to be made and things had to be readied. And then I waited for the second call to come in. I was sitting on pins and needles. And then the phone rang!

It’s a go .. come on in.

And we headed to the hospital. It is needless to say that none of us were prepared for the months to come – and maybe had I known the difficult road this would be for Lennon and myself, it could have changed things a lot. His urea cycle disorder was too challenging to manage and not having the liver transplant would have meant that his days were numbered on this planet.

I placed my faith into the doctors, nurses, my friends and family as well as myself that this would be the right decision. And despite the events after the initial transplant, the fight Lennon had to do in order to still be here today, I will always be grateful for the first donor family that so graciously decided that another person should have the opportunity to live even during their time of loss.

There will never be enough or adequate words to express my gratitude because of them we were given a chance. A chance at a life. A life without urea cycle disorder. A life without hyper ammonia episodes. But a life with an engaging personality that you want to be around because he makes you feel good just to be in his presence.

A friend of mine told me she loves being around Lennon because of his calm. I couldn’t help but chuckle because at home or in the presence of people he is comfortable with, he can be a little chaotic but in a fun charming kind of way. But then Lennon in a crowd does have this ability to feel good and I supposed once you know his story, you can’t help but admire him and be inspired to live life in a way that only he has been able to show me.

Real and in the moment presence.

And it is with those thoughts that I consistently remember the call and the first liver transplant he underwent.

Forget yesterday – don’t worry about tomorrow.

Just be present!

Wake up singing, relax and handle one task at a time. Follow your dream and enjoy your passion.

And really, is there any other way to live?

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