April is Organ Donation Awareness Month

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King of the Rock

I am way over due for a blog post and an update on Lennon and so with it being Organ Donation Awareness months, I am tackling both at the same time. Win!

Lennon is making physical progress and even some cognitive progress. He’s still academically behind with his peers and well can’t often handle the classroom of 20 kids due to sensory overwhelm BUT he is managing.

He’s had a physical recently and he has gained his weight back since the pneumonia incident but hasn’t grown much. Nothing too concerning as he will probably grow more in a few years just like his brothers – and well I am not exactly tall and he’s 4 ft 9 in right now.

One of the things I admire is his perseverance. He huddles and muddles through most any obstacle even if he becomes emotionally overwhelmed. One of the things I am in awe in is his strong affection for me though it really resembles the affection need for a much younger child. He loves to be held or picked up and at 63 lbs – boy that gets heavy. He loves his cuddle time and just needs to feel secure most days.

He’s coming up for review to determine if he still qualifies for the label of being disabled. It brings me all kinds of concerns for the services he is currently receiving that would stop just like that. In addition to his medical management that I cannot handle on my current income – life is challenging enough. I don’t know what will happen but we will cross that bridge when we get there.

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He was quite done walking

In the mean time, we enjoyed a hike to a waterfall on Skyline Drive – his idea! He loved it until we had to go back, and while he whined he did successfully return to the car and was super excited about the ice cream on our way home. His legs are still not strong as most and I told him we will walk more frequently – he is not a fan. However knowing him, it’ll be fine because we’ll have loads of fun 😉

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