Be open to the gift of life no matter where it takes you

7 years.

That’s how long it’s been since Lennon’s first liver transplant.

When we made the decision to move forward with the transplant, there is no way we could have known of all that occurred after. All we had, was hope.

Hope that the transplant would indeed ease Lennon’s life. That it would bring us some kind of normalcy that didn’t involve going to the hospital 2-3 days a week.

During the month and years that followed, hope is all we had to hang onto. Hope that it for Lennon’s future become more about the quality of life rather than quantity.

 

Life is different now, improved and riddled with less anxiety.

How far is he’s come because of this gift and the lessons we all learned along the journey, I honor them. With each struggle, infection and liver that Lennon was blessed with, we learned more about him, the way he shines his light into this world, teaching us what being open to the gift of life really means.

I say it time and again, Lennon doesn’t know what it means to be pissed off or hold it against people. And its beautiful. He gets mad like we all do at times but he doesn’t stay there. Instead, he bounces around the house singing or talking, usually having conversation with himself or his game and periodically giving me a hug-attack.

There is no stress about how he is going to do something because he doesn’t believe that he can’t. Sure he does things differently, but don’t we all?

I say this every single year, but I am forever grateful for the families who have made the decision for organ donation during their time of grief. I don’t know who they are, but I love them dearly and like every year, I will light a candle tonight (and on the 21st for liver #2). Each family deserves to be remembered for the gift they have brought to this world.

And I encourage you to be an organ donor because you are helping change someone’s life to the better, and isn’t that the best thing to do?

I think it is.

Transplant Anniversary

He loves Felix the Cat and Sonic – but this changes from day to day.

He loves video games and wishes he was old enough to play Halo.

He wants to be like Caillou and has a cat named Gilbert.

He loves his dog Sgt. Pepper and playing with Lego’s is his favorite past time.

He loves to dance – wild and crazy and snuggle with his mom.

He loves going to school and loves the weekends just the same.

He talks about his best friend and how he wishes they had more time.

He draws pictures anytime he can.

It’s Lennon’s 2 year transplant anniversary from his last transplant. All the things above I wouldn’t be able to share with you, had he not received this chance. His liver numbers continue to look good – he’s eating like a champ. His favorite is 2 eggs over easy and buttered toast; Cheese Pizza and Tomato Soup (not at the same time though); Ice Cream for desert – chocolate preferably!

I am most grateful to the donor family who is still mourning their loss of a loved one but have chosen to give my son life.

There will never be any words to describe this!

2010

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2011

2012

2012